1 in 36 children are commonly diagnosed with autism. So, there’s a high chance that you’ll often encounter a child or an adult on the spectrum. But do you know what the ideal term to address them would be?
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Many people often wonder whether they should use the term “person with autism” or “autistic person” when referring to the person on the spectrum. Even parents are divided on this issue. The preferred terminology can vary depending on personal and community preferences. Some people prefer “person with autism” (person-first language) because it emphasizes the individual before the condition. Others prefer “autistic person” (identity-first language) because they view autism as an integral part of their identity.
FlowMinder, which predominantly works with neurodiverse minds and their holistic growth with its app, finds it essential to address this discussion to find the correct terminology. Before we start, we want to thank Jamie Pakton, whose article on “Parents” inspired us to delve deeper into this matter and resolve the long-standing confusion between autistic person vs person with autism. Are you interested? Let’s start.
Autistic vs. Person with Autism: Why does this discussion matter?
Many may question why it matters. In our understanding, it’s important to consider our words carefully. How we talk about autism spectrum disorder (ASD) shapes our understanding, priorities, and beliefs about it. Many advocates are questioning the idea that “person-first” language is always best, instead embracing “autistic” as a key part of identity. We need to ask ourselves: What language truly supports and respects the autistic community?
Should we refer to them as ‘persons with autism?”
When we call someone a person with autism, this becomes a person-first language. This is the most common term used by different publications or articles when referring to ASD. The idea behind this approach is to emphasize that a person is not defined by their autism; they are the person first who happens to have autism. This perspective aims to highlight the individuality and humanity of people with autism, ensuring that the condition does not overshadow their identity.
For example, saying, “John is a person with autism,” suggests that autism is just one aspect of who John is. Advocates of person-first language argue that it helps to reduce stigma and promotes a more respectful view of individuals with disabilities.
Then, what is the problem?
The issue is both straightforward and layered. When someone uses person-first language and says, “My son with autism,” it feels like they are treating his autism as a disease, similar to cancer or diabetes. This implies that a disease needs a cure, suggesting that the ASD child needs to be “fixed.”
This is where parents of many ASD children like Jamie Pakton object. According to them, “While my son does need support to navigate his communication and sensory challenges, he doesn’t need to be fixed. Autism is part of his neurology, the way his brain is wired, and it shapes how he experiences the world. You can’t change someone’s neurology, and the idea of trying to be unsettling.”
So, is “autistic person” the proper term?
“Autistic person” is an identity-first language, which places the condition before the person. This approach is often preferred by those who view autism as an integral part of their identity. For many, autism shapes how they experience and interact with the world, and they feel that it should be acknowledged as such.
For instance, saying “Mary is an autistic person” recognizes that autism is a core aspect of who Mary is. Advocates of identity-first language argue that it embraces and affirms the identity of autistic individuals rather than separating them from their autism.
Why do people on the spectrum prefer it?
Viewing autism as an intrinsic part of a person’s identity rather than something to be fixed, many people on the spectrum refer to themselves as autistic. In an article on this topic, the Autism Self-Advocacy Network (ASAN) shares a moment from an internal committee meeting where an adult self-advocate said, “I’m not a person with autism; I am Autistic.”
Let people choose the correct term for themselves
So, where do we stand in the “person with autism” vs. “autistic person” debate? For some, like Jamie, the identity-first language feels right, so he refers to his son as his “autistic son.” Some organizations, like the Child Mind Institute in New York City, use both terms to respect the variety of opinions on the matter.
If someone you care about is autistic, it’s a good idea to ask them how they prefer to be referred to. They might have a stronger opinion on the subject than you expect. Respecting their preference and wishes is always the best choice.
FlowMinder thinks that both terms matter
Both “person with autism” and “autistic person” have their own valid perspectives. Their choice can depend on personal preference, cultural context, and the specific message one wishes to convey. Here are a few reasons why both terms matter:
Respecting individual preferences:
People have different preferences for how they are described. Some may feel strongly about using one term over the other. It’s essential to listen to and respect each individual’s choice.
Community context:
Different communities may have different conventions. For example, some autism advocacy groups may predominantly use one term while others use the opposite. Understanding and aligning with the community’s language can foster better communication and support.
Nuanced understanding:
Recognizing the existence of both terms can deepen our understanding of autism. It helps us appreciate the diverse experiences and identities of autistic individuals.
In the end
The choice between “person with autism” and “autistic person” is not a one-size-fits-all matter. Both terms have merits and reflect different perspectives on identity and respect. The most important thing is to listen to and honor the preferences of the individuals themselves. Doing so can create a more inclusive and respectful environment for everyone, spreading a message of hope and acceptance whenever and however we speak about autism.